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People with Intellectual and Developmental Disabilities Face a Crisis of Care


Staffing shortages are reaching CRISIS levels for People with Developmental Disabilities in Utah. The crisis is going to get worse if we do not act immediately.


Without caregivers, many people with developmental disabilities cannot safely live in the community. People with developmental disabilities rely on fixed, state-set rates for their caregivers’ wages. These rates haven’t increased fast enough to keep up with the booming Utah economy and staffing shortages. As a result, employers of caregivers (known as “Providers”) are losing more caregivers than they can hire. 


Using existing rate increases and Federal COVID crisis funding Providers have increased wages, hiring bonuses, retention bonuses, shift bonuses, and improved recruiting and retention efforts. Still, it has not been enough to compete with other industries that are rapidly raising their prices to increase wages and benefits to compete for a limited pool of workers.


The Crisis of Care is now increasing the number of people with developmental disabilities who have no place to go because providers cannot find enough staff.


Some people with developmental disabilities with the highest needs are bouncing in and out of short-term placements, hospitals, and jails. In some cases, these individuals may be released from hospitals or jails to become homeless because there are no other options for them. As staffing levels decrease, more people are at risk of finding themselves in this predicament.


Because of staff shortages, providers have consolidated homes, cut back on services, and stopped adding new services.  After doing everything they could Providers have had to stop serving individuals with complex needs because there are not enough staff to safely support them. Providers have successfully served these individuals for many years prior to the staffing shortage.


Other individuals are at risk of losing services if additional employees quit. The industry is in a very fragile position.


Many workers get paid higher wages to do less stressful jobs outside of disability services. Often, caregivers report that the pay is too little compared to the detailed responsibilities, personal risk, and stress of being responsible for people's lives without adequate help. Starting wages at many other jobs are now over $15/hour, while the state-set disability rates only result in a starting wage of around $12.00/hour for direct support staff. 


Unless rates and wages are changed to attract and retain more workers, individuals with developmental disabilities face an escalating and usafe crisis of care.


Listen to Testimonials from
Parents and Caregivers

Family and Individual Stories

Utah Parents Share Their Stories


Caregiver Stories

Utah Caregivers Share Their Stories


Watch this Video to Understand What Direct Support Professionals Do

Job title: Direct Support Professional – clip from "Invaluable"

Job title: Direct Support Professional – clip from "Invaluable"

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